CROSBY, Texas -- A Crosby family is packing up and moving to Colorado where marijuana is legal. They’re doing it for their 3-year-old girl.
Hannah Loew was diagnosed with Dravet Syndrome, a severe and progressive form of epilepsy, when she was 6-months-old.
Her parents say she has endured more health scares than they can count.
“You’re living every day on the edge of your seat not knowing if you’re going to have to rush to the emergency room,” explained mother Amber Loew.
The Loews have been videotaping Hannah’s average daily 50 to 100 seizures. The episodes sometimes last more than an hour.
Hannah has already been on life support three times.
“My wife has saved my daughter’s life more times than I can count,” said father Paul Loew.
Amber and Paul Loew say their daughter has been on 12 different prescriptions. They say none have been successful at quelling Hannah’s frequent seizures.
The couple feels they have no choice but move and take a chance.
The Loews have heard of several success stories involving medical marijuana and other children suffering from the same syndrome. They believe that medical marijuana could be their answer.
“There is no option to try it. It’s you jump in with both feet and go,” said Amber Loew. “This is not something where my family lives all over the United States. We live in Texas. This is our home, and we’re pretty much being forced to leave.”
The family has already purchased one-way plane tickets to fly to Colorado in March.
Hannah’s 7-year-old sister and 9-year-old brother are trying to stay positive about moving to a state they’ve never been to.
“I think about probably having more fun with Hannah not having seizures every day and not being inside so much,” said 9-year-old Dakota Loew.
Hannah won’t be smoking the marijuana when she moves to Colorado. Her parents are looking to get it in a liquid form to give her orally.
“It will work, and we have faith in that,” added dad Paul Loew.
The Loews are giving up their jobs and health insurance and risking it all based on their faith.
“We could lose our car. We could lose everything,” said Amber Loew.
Amber and Paul Loew hope to eventually wean Hannah off of all the prescriptions she is currently taking. They believe those prescriptions are hurting her cognitive and physical development.
Hannah will not be able to legally return to Texas if the marijuana is successful because of a federal ban.